Mahsa Shabani
Mahsa Shabani
Professor at Ghent University
Verified email at
Cited by
Cited by
Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation
M Shabani, P Borry
European Journal of Human Genetics 26 (2), 149-156, 2018
A review of the key issues associated with the commercialization of biobanks
T Caulfield, S Burningham, Y Joly, Z Master, M Shabani, P Borry, ...
Journal of Law and the Biosciences 1 (1), 94-110, 2014
Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review
M Shabani, L Bezuidenhout, P Borry
Expert review of molecular diagnostics 14 (8), 1053-1065, 2014
Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?
M Shabani
Journal of the American Medical Informatics Association 26 (1), 76-80, 2019
The challenges of the expanded availability of genomic information: an agenda-setting paper
P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, ...
Journal of community genetics 9, 103-116, 2018
Re‐identifiability of genomic data and the GDPR: Assessing the re‐identifiability of genomic data in light of the EU General Data Protection Regulation
M Shabani, L Marelli
EMBO reports 20 (6), e48316, 2019
Ethics review of big data research: What should stay and what should be reformed?
A Ferretti, M Ienca, M Sheehan, A Blasimme, ES Dove, B Farsides, ...
BMC medical ethics 22 (1), 51, 2021
Ethics review for international data-intensive research
ES Dove, D Townend, EM Meslin, M Bobrow, K Littler, D Nicol, J de Vries, ...
Science 351 (6280), 1399-1400, 2016
From the principles of genomic data sharing to the practices of data access committees
M Shabani, BM Knoppers, P Borry
EMBO molecular medicine 7 (5), 507-509, 2015
Is there a right time to know?: the right not to know and genetic testing in children
P Borry, M Shabani, HC Howard
Journal of Law, Medicine & Ethics 42 (1), 19-27, 2014
Controlled access under review: improving the governance of genomic data access
M Shabani, SOM Dyke, Y Joly, P Borry
PLoS Biology 13 (12), e1002339, 2015
Will the European Health Data Space change data sharing rules?
M Shabani
Science 375 (6587), 1357-1359, 2022
Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?
D Mascalzoni, HB Bentzen, I Budin-Ljøsne, LA Bygrave, J Bell, ES Dove, ...
Annals of Internal Medicine 170 (5), 332-334, 2019
Toward better governance of human genomic data
KC O’Doherty, M Shabani, ES Dove, HB Bentzen, P Borry, MM Burgess, ...
Nature genetics 53 (1), 2-8, 2021
DNA data marketplace: an analysis of the ethical concerns regarding the participation of the individuals
E Ahmed, M Shabani
Frontiers in genetics 10, 488227, 2019
Registered access: a ‘Triple-A’approach
SOM Dyke, E Kirby, M Shabani, A Thorogood, K Kato, BM Knoppers
European Journal of Human Genetics 24 (12), 1676-1680, 2016
Registered access: authorizing data access
SOM Dyke, M Linden, I Lappalainen, JR De Argila, K Carey, D Lloyd, ...
European Journal of Human Genetics 26 (12), 1721-1731, 2018
Review of policies of companies and databases regarding access to customers’ genealogy data for law enforcement purposes
S Skeva, MHD Larmuseau, M Shabani
Personalized medicine 17 (2), 141-153, 2020
Challenges of web-based personal genomic data sharing
M Shabani, P Borry
Life sciences, society and policy 11, 1-13, 2015
“You want the right amount of oversight”: interviews with data access committee members and experts on genomic data access
M Shabani, P Borry
Genetics in Medicine 18 (9), 892-897, 2016
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